Adrenoleukodystrophy
All patients living in the United States diagnosed with adrenoleukodystrophy, either by newborn screen, based on family history or otherwise, are eligible to participate in this study.
Other: Medical Record Abstraction
Collect clinical and epidemiological data through medical record abstraction and self-reported questionnaire survey semi-annually.
Other: Biospecimen Sample Collection
Collect research samples, when feasible for those diagnosed with ALD.
Source: View full study details on ClinicalTrials.gov
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